Ethical, Legal, and Social Issues (ELSI) of the Human Genome Project
The U.S.
Department of Energy (DOE) and the National Institutes of Health (NIH) have devoted 3% to 5% of their annual Human Genome Program budgets toward studying the ethical, legal, and social issues (ELSI) surrounding availability of genetic information.
•Genetic testing of an individual for a specific condition due to family history (prenatal, carrier, and presymptomatic testing); population screening (newborn, premarital, and occupational)
Should testing be performed when no treatment is available? •Gene therapy which may someday be used to treat, cure, or prevent genetic disorders What is normal and what i...
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